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Chiari Support Group??

Posted by carrieschiariconnection at 11:30 AM on February 05, 2009

It's been a rough year, and with that said I've thought about the possibilities of there being many people in the Ohio area that might be feeling the same way as I have.  I would like to know how many people in Ohio would be interested in having a Chiari Support Group once a month (more if necessary) in Ohio...which will probally change from time to time to accomodate others who have trouble driving to the support group site.  I would like to see how many people we can get together and then talk about when, where, and the details.  Thanks so much!

I think that I would benefit a lot to be able to share my concerns and how helpless I tend to feel from time to time.  Chiari, in my opinion, is one of the most misunderstood disorders where doctors and health care providers lack so much knowledge and therefore cannot honestly give us the feedback and support that we need that we can potentially find with one another.

Let me know....and you can email me as well: Carriebear31@msn.com

 

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Reply carrieschiariconnection
11:38 AM on February 05, 2009
P.S. I am aware that there is a support group in the Cleveland area..but I am more closer to Columbus and Dayton....and I would be happy to point you in the direction of the support group in Cleveland area (upon making sure they are still having meetings). Thank you!!!!

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