Carries Chiari Connection

 I have recently lost hope in doctors more so lately than ever! I won't go into complete detail about that (I will save that for a rainy day)but I feel more compelled to listen to someone who has Chiari or has been in the Chiari loop for a while than a doctor. Here's the problem: Last week I started having pressure in my head in various places of my head. It wasn't located in just one area but did seem to cause upper shoulder and lower back neck aches with it. By the late morning (and I was at work)my head was hurting so severe and I now had horrible sensitivity to light and could not tolerate working and trying to control the pain. I walked to our nurse and asked her to help me and that I needed to lay down in the dark or something and she checked my vitals which were fine and let me lay down. She also gave me a couple of ibruprophen which never helped at all. After laying in the dark in the room for about 40 minutes she came in and told me that she was very sorry but I needed to decide what I was going to do. Honestly you shouldn't stay in the nurses office for more than 20 minutes before deciding either to return to your dept. or go home. I told her that I really needed to leave and that there was no way that I could deal with it anymore. She had me call my husband to come get me because it was very obvious that I was unable to drive. He came, sunglasses for me in hand, and took me home because he too feels the same about the doctors. They wouldn't do anything for me anyhow. After going home I had him give me as much pain medicine as I would be allowed and a cold washrag. (SEE PREVIOS BLOG FOR DETAILS OF THE REST OF THIS STORY...lol..sorry but it's not easy to keep rewriting the same thing over and over...lol and you can pick up after that right here....>>>>>>>>>>>>>>>>>>>>>>>)

I NEEDED to go to work Friday and did. I managed to get through the day but over the weekend I developed a weird symptom that has me baffled and is actually the whole reason for my post. My right eye has been feeling as if it is going out of focus by something "inside" of my eye moving or some kind of pressure behind my eyeball. I'm not sure exactly if that is the correct way to explain but I have no other way to do it. But every so often over the weekend my eye would go out of focus and I would feel pressure behind my eye. By the beginning of the work week it was doing it more frequently and was hurting. It was almost as if my headache had moved into my eye. Today is Thursday and I am now having this "eye pressure/out of focus" sensations sometimes 8-10 times an hour. Some hours go by without any but by the end of today I would probably say it's happened over 50 times today and it is so annoying, troubling, and is concerning me. I work in a PC Board room and have to put tiny parts on boards and look down a lot. I had a horrible time trying to do my job and noticed that sometimes I wasn't seeing the way I should with that eye. Almost as if I were switching #'s or letters like someone with Dsylexia. I am trying hard to be accurate in how I describe it because I am so sick of running to the doctor or hospital and being sent home because there is nothing they can do and there is no "reason" for my symptoms. BUT...if this is serious...I don't want to risk my health. Please reply if you have a pretty postive idea of what it may be. Also, if you can please send any links that might support the answer so that I can read up on it! Thank you so much ahead of time! I am really concerned and very aggravated with this!

~Carrie

(Also, posted in the blog/board of CCI (Chiari connection International in which I am not affiliated with in any other way than being a member just like the general public but I am a big supporter and have had their link on my websites side bar for almost as long as I've had this site.)