Carries Chiari Connection

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carrieschiariconnection


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Joined Jan 11 2009
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Chiari Malformation
Rare Cervical Spine & Skull Base Disease
Carries Chiari Connection

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6 Comments

Reply carrieschiariconnection
04:36 PM on February 19, 2009
Sorry I've been MIA....and sick~ check out my latest blog.
Reply kathymays
04:10 PM on February 17, 2009
i saw family doc. this a.m. she actually knew about chiari, amazing, thank god... i have all my meds and she is going to get me signed up for pool therapy for pain and stiffness and excercise..... finally something in my favor!!!!!! so i'll keep fighting the fight only now with a little help....hope all is well w/ you. many blessings.... kathy
Reply carrieschiariconnection
08:40 PM on February 16, 2009
kathymays says...
well, hello happy presidents day. i ran out of seizure med fri. started having seizures again last night. went to urgent care today and they gave me my medicine. also a referral to a neuroligist and family doc. thank god finally docs. that aren't scared of CHIARI ...... they think they are scared of it they should be me, anyways i got docs. and that's all that matters. i see fam. doc. in a.m. wish me luck, see neuro doc. on 25th. also i have a call in to a dr. green who specializes in chiari. he's in miami an hour from us as opposed to 16 hours to ny. from ohio....... they will call me tomorrow and do an intake, pray they will take me on. well i'll go for now , hope all is well on your end........ many blessings, kathy

Hey Kathy,
O wow!! I am wishing you a ton of luck and sending a bunch of positive energy your way! Let me know what happens and don't run out of meds anymore!!! I will be thinking of you.
Hugs....
~Carrie
Reply kathymays
03:55 PM on February 16, 2009
well, hello happy presidents day. i ran out of seizure med fri. started having seizures again last night. went to urgent care today and they gave me my medicine. also a referral to a neuroligist and family doc. thank god finally docs. that aren't scared of CHIARI ...... they think they are scared of it they should be me, anyways i got docs. and that's all that matters. i see fam. doc. in a.m. wish me luck, see neuro doc. on 25th. also i have a call in to a dr. green who specializes in chiari. he's in miami an hour from us as opposed to 16 hours to ny. from ohio....... they will call me tomorrow and do an intake, pray they will take me on. well i'll go for now , hope all is well on your end........ many blessings, kathy
Reply kathymays
10:27 AM on February 12, 2009
carrie thanx 4 posting my letter. i'm glad other chiarians we'll be able to read it. and please feel free to comment.
Reply kathymays
04:56 PM on February 09, 2009
carrie we should chat we seem to have alot in common

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