carrieschiariconnection

carrieschiariconnection
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Joined Jan 11 2009

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Chiari Malformation
Rare Cervical Spine & Skull Base Disease
Carries Chiari Connection

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carrieschiariconnection posted a reply to topic My experience with my doctors May 01, 2010
carrieschiariconnection commented on the guestbook Jan 18, 2010
carrieschiariconnection posted a reply to topic My experience with my doctors Jul 12, 2009
carrieschiariconnection commented on a profile Jun 21, 2009
carrieschiariconnection is now friends with thunterthehunter@yahoo.com Apr 13, 2009
carrieschiariconnection added a new album Friends with Chiari Apr 10, 2009
carrieschiariconnection posted 2 new photos to Friends with Chiari Apr 10, 2009
carrieschiariconnection posted a reply to topic My experience with my doctors Mar 21, 2009 - View

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6 Comments

Reply carrieschiariconnection

04:36 PM on February 19, 2009

Sorry I've been MIA....and sick~ check out my latest blog.

Reply kathymays

04:10 PM on February 17, 2009

i saw family doc. this a.m. she actually knew about chiari, amazing, thank god... i have all my meds and she is going to get me signed up for pool therapy for pain and stiffness and excercise..... finally something in my favor!!!!!! so i'll keep fighting the fight only now with a little help....hope all is well w/ you. many blessings.... kathy

Reply carrieschiariconnection

08:40 PM on February 16, 2009

kathymays says...
well, hello happy presidents day. i ran out of seizure med fri. started having seizures again last night. went to urgent care today and they gave me my medicine. also a referral to a neuroligist and family doc. thank god finally docs. that aren't scared of CHIARI ...... they think they are scared of it they should be me, anyways i got docs. and that's all that matters. i see fam. doc. in a.m. wish me luck, see neuro doc. on 25th. also i have a call in to a dr. green who specializes in chiari. he's in miami an hour from us as opposed to 16 hours to ny. from ohio....... they will call me tomorrow and do an intake, pray they will take me on. well i'll go for now , hope all is well on your end........ many blessings, kathy

Hey Kathy,
O wow!! I am wishing you a ton of luck and sending a bunch of positive energy your way! Let me know what happens and don't run out of meds anymore!!! I will be thinking of you.
Hugs....
~Carrie

Reply kathymays

03:55 PM on February 16, 2009

well, hello happy presidents day. i ran out of seizure med fri. started having seizures again last night. went to urgent care today and they gave me my medicine. also a referral to a neuroligist and family doc. thank god finally docs. that aren't scared of CHIARI ...... they think they are scared of it they should be me, anyways i got docs. and that's all that matters. i see fam. doc. in a.m. wish me luck, see neuro doc. on 25th. also i have a call in to a dr. green who specializes in chiari. he's in miami an hour from us as opposed to 16 hours to ny. from ohio....... they will call me tomorrow and do an intake, pray they will take me on. well i'll go for now , hope all is well on your end........ many blessings, kathy