Please take the time to tell everyone about your walk in your state or about your experience while attending one of the walks....Please let us know who, what, where,and when...and let us know how it affected your life and how you feel it has done for awareness!
Please visit my page: Events and Reviews to learn about my walk in Urbana Ohio...Thank you...
I was diagnosed with Chiari in February of 2007. My size of my herniation, which really has no revelance, is 10-11mm. (Recently told it is actually 16mm) I also have a herniated disc in my lower back, a minimal bulged disc in my cervical spine, degenerate disc disease/facet anthropothy, arthritis, and mild scoliosis.
I felt very helpless with learning of my condition at first. Then I began to think of ways to turn this into something positive. I belong to a support group online and read the posts everyday. In reading these posts I came to realize that the majority of people with Chiari are interested in finding other people that are going through the same things. People want to know where others with Chiari live, what their symptoms are, their age and gender, and other facts to connect and try to find peace of mind. With that said, that is why I developed this site (which will contantly be going under construction until I learn more about web disign).
I know that I get comfort when I talk to someone who shares my feelings and believe that others find comfort with one another as well.
Please use this site to connect with other Chiarians and other Chiari sites that can help you find support, get educated, educate others, and find comfort in knowing that there is someone out there just like you!
Love and hugs to all of you,
Carrie
February 2009...wow what a roller coaster ride.....
